Comments on: Steroids come to an end… http://twotrials.org/2008/04/14/steroids-come-to-an-end/ A mother training for the Olympic Marathon Trials, a daughter fighting childhood leukemia Tue, 07 Oct 2008 00:23:13 +0000 http://wordpress.org/?v=2.3.2 By: Walter Shyska http://twotrials.org/2008/04/14/steroids-come-to-an-end/#comment-588 Walter Shyska Mon, 07 Jul 2008 01:12:18 +0000 http://twotrials.org/2008/04/14/steroids-come-to-an-end/#comment-588 Hi Emily, We are members of the Rochester Runners and met you & Maddie at our meeting and my wife Mary Ulinski (one of the best 63 year old runners in N.H.) and I made a donation. I just finished reading your updates and need to tell you that I was diagnosed last week with a cancer called multiple myeloma (I'm 62) and have just started taking much of the same drugs as Maddie (chemo, steroids and thalidomide and IV's) which hopefully will stabilize and possibly heal my condition. Ironically, earlier in the year, Feb. 27th, I suffered a severe concussion (slipped on the ice) in Chicago. I was unconscious for 16 days. But I recovered, and in April, we saw you run the trials. Then on May 25th, my wife and I ran the Vermont 2 person Marathon relay. It took me 2:20 for the 1st half, but it was the most memorable race I have ever done. But then I started having other problems and 2 weeks later (about June 10th) I was diagnosed with the myeloma cancer (bone marrow problems, blood cell problems, bone problems). Out thoughts have been with Maddie, you and your husband since we met. Now, reading your updates, my thoughts and feelings are difficult to express, but they will always be with Maddie, hoping that she will also be a runner and we may both someday run a 5k. Fond regards and hopeful wishes, Walter Shyska & Mary Ulinski Hi Emily, We are members of the Rochester Runners and met you & Maddie at our meeting and my wife Mary Ulinski (one of the best 63 year old runners in N.H.) and I made a donation.

I just finished reading your updates and need to tell you that I was diagnosed last week with a cancer called multiple myeloma (I’m 62) and have just started taking much of the same drugs as Maddie (chemo, steroids and thalidomide and IV’s) which hopefully will stabilize and possibly heal my condition.

Ironically, earlier in the year, Feb. 27th, I suffered a severe concussion (slipped on the ice) in Chicago. I was unconscious for 16 days. But I recovered, and in April, we saw you run the trials. Then on May 25th, my wife and I ran the Vermont 2 person Marathon relay. It took me 2:20 for the 1st half, but it was the most memorable race I have ever done. But then I started having other problems and 2 weeks later (about June 10th) I was diagnosed with the myeloma cancer (bone marrow problems, blood cell problems, bone problems).

Out thoughts have been with Maddie, you and your husband since we met. Now, reading your updates, my thoughts and feelings are difficult to express, but they will always be with Maddie, hoping that she will also be a runner and we may both someday run a 5k.

Fond regards and hopeful wishes,
Walter Shyska & Mary Ulinski

]]> By: B+B http://twotrials.org/2008/04/14/steroids-come-to-an-end/#comment-422 B+B Sun, 20 Apr 2008 15:14:19 +0000 http://twotrials.org/2008/04/14/steroids-come-to-an-end/#comment-422 Great job, Em. Proud of you and Maddie. Are you going to push her in the Boston?! Great job, Em. Proud of you and Maddie. Are you going to push her in the Boston?!

]]> By: Tami Sullivan http://twotrials.org/2008/04/14/steroids-come-to-an-end/#comment-421 Tami Sullivan Sun, 20 Apr 2008 03:20:46 +0000 http://twotrials.org/2008/04/14/steroids-come-to-an-end/#comment-421 thank you for raising awareness of childhood cancer!!!!! you're an inspiration and i'll be rooting for you all the way... all best to you and your family from a survivor mom in san jose, california. thank you for raising awareness of childhood cancer!!!!! you’re an inspiration and i’ll be rooting for you all the way… all best to you and your family from a survivor mom in san jose, california.

]]> By: Gretchen Spann http://twotrials.org/2008/04/14/steroids-come-to-an-end/#comment-420 Gretchen Spann Sat, 19 Apr 2008 21:10:53 +0000 http://twotrials.org/2008/04/14/steroids-come-to-an-end/#comment-420 Emily, Brad and Maddie- thank you for sharing your story and for your tremendous support of MCCP. Your fundraising efforts and results are amazing! Our daughter is in active treatment at MCCP for ALL too - so we appreciate all that you have done to heighten awareness of all of the great things that they do. We wish you all the best in the trials tomorrow! Gretchen Spann & Phil Cawley, and Finn & Neve Emily, Brad and Maddie- thank you for sharing your story and for your tremendous support of MCCP. Your fundraising efforts and results are amazing! Our daughter is in active treatment at MCCP for ALL too - so we appreciate all that you have done to heighten awareness of all of the great things that they do.

We wish you all the best in the trials tomorrow!

Gretchen Spann & Phil Cawley, and Finn & Neve

]]> By: Rob http://twotrials.org/2008/04/14/steroids-come-to-an-end/#comment-401 Rob Fri, 18 Apr 2008 12:14:45 +0000 http://twotrials.org/2008/04/14/steroids-come-to-an-end/#comment-401 Hi folks. It's been 9 months or so since my son finished treatment over here in Vermont (he was dx with ALL 11/29/04 at age 4). Things are going well for him, but the idea of dexamethasone still makes me cringe. Congratulations on making it through DI. And best of luck at the trials. Hi folks. It’s been 9 months or so since my son finished treatment over here in Vermont (he was dx with ALL 11/29/04 at age 4). Things are going well for him, but the idea of dexamethasone still makes me cringe. Congratulations on making it through DI. And best of luck at the trials.

]]> By: Alex http://twotrials.org/2008/04/14/steroids-come-to-an-end/#comment-399 Alex Fri, 18 Apr 2008 07:25:06 +0000 http://twotrials.org/2008/04/14/steroids-come-to-an-end/#comment-399 Hello Brad, Emily and Maddie, I've just seen your amazing story on the news here in Adelaide, Australia and I just wanted to say how incredible and inspirational your family's story is. All my very best wishes for Maddie's treatment and recovery, and for Emily's Olympic trial. I was really moved, Brad, by the comments you made about how the Olympic dream was shared by your whole family. Good luck and please know we're thinking of you. Alex Hello Brad, Emily and Maddie,

I’ve just seen your amazing story on the news here in Adelaide, Australia and I just wanted to say how incredible and inspirational your family’s story is. All my very best wishes for Maddie’s treatment and recovery, and for Emily’s Olympic trial. I was really moved, Brad, by the comments you made about how the Olympic dream was shared by your whole family.
Good luck and please know we’re thinking of you. Alex

]]> By: Donna McGrory http://twotrials.org/2008/04/14/steroids-come-to-an-end/#comment-398 Donna McGrory Fri, 18 Apr 2008 07:01:30 +0000 http://twotrials.org/2008/04/14/steroids-come-to-an-end/#comment-398 Hi to an inspirational family, I just watched your amazing story on the news in Australia and wanted to say, I Know exactly how you are feeling and to GO GIRL! My husband and I also have a little girl called Maddy, but in 2000, I tell you this story to hopefully inspire you even more, we also had a little baby boy called Alexander, who passed away from an unavoidable heart defect. The reason I can empathize with you is that he passed two months before my husband, Scott, was to compete in the Sydney Olympics. Like your husband said, it was not just your dream, it was ours as a family to win that medal...and that he did he won GOLD! And I believe you will have Maddie there with you when you achieve your dream, they give you the motivation to dig deeper than you ever dreamt of, but it runs deeper than that - as I'm sure you have felt it your heart! So, cherish every moment and imagine yourself on that podium, as I will for you now! Donna and Scott and Maddy McGrory Hi to an inspirational family,

I just watched your amazing story on the news in Australia and wanted to say, I Know exactly how you are feeling and to GO GIRL! My husband and I also have a little girl called Maddy, but in 2000, I tell you this story to hopefully inspire you even more, we also had a little baby boy called Alexander, who passed away from an unavoidable heart defect. The reason I can empathize with you is that he passed two months before my husband, Scott, was to compete in the Sydney Olympics. Like your husband said, it was not just your dream, it was ours as a family to win that medal…and that he did he won GOLD! And I believe you will have Maddie there with you when you achieve your dream, they give you the motivation to dig deeper than you ever dreamt of, but it runs deeper than that - as I’m sure you have felt it your heart! So, cherish every moment and imagine yourself on that podium, as I will for you now! Donna and Scott and Maddy McGrory

]]> By: Gerry DiGiusto http://twotrials.org/2008/04/14/steroids-come-to-an-end/#comment-395 Gerry DiGiusto Fri, 18 Apr 2008 01:25:14 +0000 http://twotrials.org/2008/04/14/steroids-come-to-an-end/#comment-395 Maddie, Emily, and Brad, Thank you so much for what you are all doing. It's a lesson in courage and tenacity that is nothing less than inspirational. We're proud of all of you and all you're accomplishing. Good luck at the trials and the treatment. You'll be in our thoughts. Caroline Staudt and Gerry DiGiusto Maddie, Emily, and Brad,

Thank you so much for what you are all doing. It’s a lesson in courage and tenacity that is nothing less than inspirational. We’re proud of all of you and all you’re accomplishing. Good luck at the trials and the treatment. You’ll be in our thoughts.

Caroline Staudt and Gerry DiGiusto

]]> By: Lauren DeLillo http://twotrials.org/2008/04/14/steroids-come-to-an-end/#comment-394 Lauren DeLillo Fri, 18 Apr 2008 01:10:44 +0000 http://twotrials.org/2008/04/14/steroids-come-to-an-end/#comment-394 Hi Emily, Brad, and Maddie~ I've been part of the Leukemia & Lymphoma Society's Team in Training for five years. Thousands of us have been working really hard for the last 20 years to raise millions of dollars to help find a cure for blood cancers to help Maddie and other children and adults. There are so many people who care and we won't stop until there is no more cancer. Best of luck on Sunday! I am a marathon runner, too, but not competitive in any way, so I am in total awe of you! Lauren DeLillo TNT Marathon Coach Tucson, Arizona Hi Emily, Brad, and Maddie~

I’ve been part of the Leukemia & Lymphoma Society’s Team in Training for five years. Thousands of us have been working really hard for the last 20 years to raise millions of dollars to help find a cure for blood cancers to help Maddie and other children and adults. There are so many people who care and we won’t stop until there is no more cancer. Best of luck on Sunday! I am a marathon runner, too, but not competitive in any way, so I am in total awe of you!
Lauren DeLillo
TNT Marathon Coach
Tucson, Arizona

]]> By: Kelsey Albanese Wolverton http://twotrials.org/2008/04/14/steroids-come-to-an-end/#comment-393 Kelsey Albanese Wolverton Fri, 18 Apr 2008 01:01:15 +0000 http://twotrials.org/2008/04/14/steroids-come-to-an-end/#comment-393 Hi Emily, Brad and Maddie - You are all absolutely amazing! We have been following your journey over the last several months and my family has been overwhelmed by your strength, perseverence and determination. Emily, while playing field hockey with you at Bowdoin, I was always in awe of your speed and tenacity on the field. You always gave it your all...nothing less than 110%. You are a true competitor. You are an inspiration to all of us and an unbelievable role model and mother to Maddie. I think of you often and my thoughts and prayers are with you. We wish Maddie and all of the other children at MCCP a successful recovery and we wish you all the best on Sunday. Good Luck and Go U Bears! Kelsey Hi Emily, Brad and Maddie -

You are all absolutely amazing! We have been following your journey over the last several months and my family has been overwhelmed by your strength, perseverence and determination. Emily, while playing field hockey with you at Bowdoin, I was always in awe of your speed and tenacity on the field. You always gave it your all…nothing less than 110%. You are a true competitor. You are an inspiration to all of us and an unbelievable role model and mother to Maddie. I think of you often and my thoughts and prayers are with you. We wish Maddie and all of the other children at MCCP a successful recovery and we wish you all the best on Sunday. Good Luck and Go U Bears!

Kelsey

]]>